We are working together with women and partners, carers, healthcare professionals and researchers to find out the most important unanswered questions for people affected by pregnancy hypertensive disorders, which we hope will influence what is researched in this field in the future. We already launched out initial survey and received an overwhelming response from people who had unanswered questions relating to high blood pressure in pregnancy. You can help us further by completing our second survey which aims to identify the most popular research questions and place them in order of importance.
To give some background, King’s College London, along with collaborators including Action on Pre-eclampsia, other groups representing women, and representatives from universities and the health service have set up a Priority Setting Partnership (PSP) using the methods set out by the James Lind Alliance – an alliance committed to enabling people with lived experience, their carers and healthcare professionals to work together to agree their shared research priorities.
Those directly affected by medical conditions have a significant and valuable contribution to make to identifying research priorities. The aim of our priority setting partnership is to come up with a ‘Top 10’ list of research priorities for patients with high blood pressure in pregnancy as well as other hypertensive (increased blood pressure) disorders of pregnancy.
Our steering group includes women and partners who have lived experience of hypertension in pregnancy, as well as midwives and doctors involved in caring for women and their babies during and after pregnancy. We have already gathered the opinions of those with an interest in pregnancy hypertension through our initial survey and we have just launched a second survey which we hope will help us to identify and prioritise the most popular research questions from our initial results. It’s important to the steering group that we receive a diverse and inclusive range of responses at every stage in the process, so we will continue to promote our second survey and the work of our PSP through our wider partner networks such as patient support groups, clinics, websites and relevant charities and local NHS Trusts.
Once we have reached a shortlist of around 20-30 unanswered questions, we will hold a final prioritisation workshop to agree the final ‘Top 10’ blood pressure in pregnancy research priority questions. The ‘Top 10’ will be used by researchers to apply for funding for projects which could improve care for women with pregnancy hypertension in the future. To help bring us one step closer to our ‘Top 10’, click here to take the second survey which is open now!