Frequently asked questions

What areas does the Blood Pressure in Pregnancy PSP cover?


For this PSP, we are focusing on the questions that remain unanswered about high blood pressure in pregnancy. These include questions about high blood pressure as a pre-existing health concern before pregnancy as well as pregnancy onset hypertensive disorders extending to the post-partum period. We are interested in how high blood pressure in pregnancy might be prevented, how it is managed and the care that is available to women who have hypertensive disorders in pregnancy.




Am I eligible to take part in the survey?


Yes! Anyone with an interest in blood pressure in pregnancy is eligible to take part in the survey whether they have personal experience of high blood pressure in pregnancy or not.




What questions can I include in the survey?


Anything at all relating to high blood pressure in pregnancy. You may want to ask questions on whether high blood pressure in pregnancy will affect the woman's or baby's physical, emotional or social wellbeing. Different time periods such as before, during or after pregnancy may be of interest to you. Or you may want to ask how doctors and midwives can provide better care in predicting future problems (such as pre-eclampsia or babies being early or small), preventing, diagnosing or managing related problems.




Does it matter if I don't know whether my question has been researched already or not?


No. After the survey has closed, all of the responses we have recieved will be categorised and compared to existing research about high blood pressure in pregnancy. If your question has already been answered or is currently being investigated, it will not be included in the first round of shortlisting, but this does not matter and will not affect whether we include any other questions that you submit, as all of your answers will be categorised separately.




Can I take part in helping to prioritise the questions after the survey closes?


Yes you can. If you would like to be kept up to date with the progress of the project and/or would like us to get in touch with you to let you know about further prioritisation activities such as the workshops where we will decide out 'top ten' research priorities, you can give us your email address. There will be an opportunity to leave us your details when you complete the survey or on the home page of this website.




What is the James Lind Alliance?


The James Lind Alliance (JLA) is a non-profit making initiative which is funded by the National Institute of Health Research (NIHR). It provides a “tried-and-tested”, fair and rigorous process to help patients and clinicians work together to agree which are the most important treatment uncertainties affecting their particular interest (in this case miscarriage), in order to influence the prioritisation of future research in that area.




What is the Blood Pressure in Pregnancy Priority Setting Partnership?


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Who is involved?


Click on the Our Team tab to meet the clinical, research and lay members of our PSP.




Can other organisations still get involved?


Yes! We are keen to hear from any organisations who can reach women and those affected by high blood pressure in pregnancy and the healthcare professionals who care for and support them. We want to make the partnership as inclusive as possible.




What do you hope to achieve?


We hope that the results of the project will shape the blood pressure in pregnancy research agenda and act as a catalyst for more funding opportunities for research in this area.




Why do we need to ask for both women's, researcher's and clinician's ideas?


Research on the effects of treatments and how different health conditions are managed often overlooks the shared interests of patients, carers and clinicians. As a result, questions they all consider important are sometimes not addressed and many areas of potentially important research are often neglected. The JLA exists to help address this imbalance. Even when researchers address questions of importance to patients and clinicians, they often fail to provide answers that are useful in practice. Another purpose of the JLA is to address the mismatch between what researchers want to research, and the practical information that is really needed by patients and clinicians every day. The Blood Pressure in Pregnancy PSP is going to bring together the shared views of patients (i.e. women and those affected by high blood pressure in pregnancy) and clinicians in a very powerful way and highlight exactly what needs addressing in this area of research to make the biggest difference.




How long will the project take?


From official launch of the partnership to the report findings, approximately 36 months.




Why will this project take so long?


We want to involve as many people as possible in this project and this means allowing sufficient time to reach out to women and those who have been affected by high blood pressure in pregnancy and the busy healthcare professionals that care for them. In addition to this, it will take several months to collate the research questions generated by the survey and identify gaps in knowledge, before prioritising these questions systematically to identify areas for future research.




How many survey responses are you hoping to get?


It is difficult to predict the response we will receive, as nothing like this has been done before for blood pressure in pregnancy. But other partnerships have received a fantastic response, generating hundreds if not thousands of unanswered research questions!




Who was James Lind?


Three centuries ago, sailors were dying of scurvy. There were many uncertainties about the effects of treatments that were being used at the time. A Scottish naval surgeon, James Lind, decided to confront these uncertainties by comparing six of the different remedies in use at that time in a controlled trial amongst 12 men. By conducting this first ever clinical trial, James Lind showed that patients treated with citrus fruits recovered much more rapidly than patients given other treatments. You will find links to much more information about him at www.jla.nihr.ac.uk.





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